Wednesday, February 18, 2015

Milestones, Surgery, and a Positive Feedback Loop

Christina has been so clever lately! She is so motivated to do "normal things" like sit up and stand up. Because of her mental retardation and low muscle tone, these milestones have been delayed. Also we believe that her hatred of the light has impeded these developments, to an extent, because she avoids lifting her head to shade her eyes. But even with all of these disadvantages, she still has a strong desire to reach normal physical milestones.


She uses the bed frame to hold her head up against for support. She did this all on her own! She's brilliant!


In conjunction with the downward dog yoga pose to which she is partial, she also likes this sitting position. From this position, she will put her hands on the ground and push up -- lifting her head as high as she can, and holding the position for as long as she can. You can see how much she is straining to be able to do this! She is so motivated and hard working! When I work out at the gym, I always quit before it gets that hard for me! 



This is her version of downward dog. Her balance is amazing! She is balancing on one foot and her head and putting that other foot in her mouth! She recently had another eye surgery for the glaucoma in her right eye. Both eyes have glaucoma, but her right eye seems to be the eye that struggles the most. (The right eye is also the eye that my brother James ended up having removed. Clearly a trait of our Trisomy 2q.)


She's not always fond of her stroller. It helps her develop core strength and sit up right. 


Brian got her to calm down and enjoy her stroller! 



This was a huge milestone. She was able to stand a few times! We placed her here against the ottoman and got her legs stable underneath her and then she held this position for about 30 seconds.


Christina's grin with double dimples is just so delicious. I could eat her up! 


I love these two together! Since Claire was born it seems that Brian and Christina have created their own positive-feedback loop with each other. Before Claire was born, Christina preferred me over Brian. It wasn't that Brian did anything wrong or wasn't attentive, but more like how a nursing baby clings to their mother. But once Claire was born, I actually had a clinging, nursing new baby. And Christina must have realized that the attention I could give her was much more limited. Because of this, it seems she started to take more of a liking to Brian. And in turn, she became much more fun to Brian. Who in turn could get her to laugh more, and then Christina would be even more adorable and Brian would then find her that much more delightful and the cycle continues! They have become such peas in a pod!


1 comment:

  1. Wow, I'm so impressed!! What a hard little worker! It's such a delight to see her smile :). I want to play with her!

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